Tuesday, October 15, 2013

Harley Wayne Green

Please check out the plea below on behalf of Harley and Chris McDougal’s great grandson, 5 month-old Harley Wayne Green.  Harley McDougal passed away a few years ago and was a member of San Jacinto Lodge, as is little Harley’s dad, Jarrod Green (Sarah White’s brother, and Tony Vaughn’s brother in law).  If you would like a T-shirt, just let me know and I will put in the order for you, or you can contact Sarah at the number below.  They will also accept donations from individuals, or from your Lodge if they choose to support this little brother.  Keep them in your prayers and help out if you can.  Thank you for supporting a brother’s family in need.

On 5.14.13 Harley was born a whopping 9 lbs 13 oz. he was a big boy. They discovered that most of that was fluids he had been retaining and several days later, he was back to newborn size. Everything seemed ok for a while. He developed jaundice and they did several tests including a liver biopsy. They put him on some different vitamins and the jaundice cleared up quite a bit. They went back for a checkup when he turned yellow again. This time a test showed that things were not going right in his little liver. They were quickly referred to a doctor in Houston. Soon Harley had 10 doctors and they said he was a very sick baby. After slowly ruling out several other diseases, they decided he had a rare virus that attacks his organs. They decided that he needed a liver transplant. At this point his kidneys had also slowed down so they had him set up and ready to go for dialysis. His potassium levels were really high so they tried to up his glucose level from 57 to 100 and it got into the 300s instead. Since then they've had him sedated and restrained and ready for a transplant. A liver became available! But at that point Harley was not stable enough for surgery, so the liver went to the next person on the transplant list. The next day, Harley lost a lot of blood (I'm not sure what started it, but I know his blood was really thin and it wasn't clotting) his blood pressure dropped and his little heart actually stopped for a short while. The doctors worked quickly and got him blood and the care he needed and brought him back around! A few days later he started bleeding again, but they caught it much faster. They gave him something to make his blood clot more. They put Harley on dialysis on Monday and will do it every day for a week and every other day the week after that. It seems to be working, Harley peed this morning! It's been a few days since he had. They say Harley is stable enough for a new liver now! I have faith he will have a new one soon!

We're selling 2 different t-shirts to help with medical expenses. If you or anyone you know would like to buy one, please let me know. 

There is also a Benefit Savings account at Amarillo National Bank, which you can donate directly to!


Green t-shirt with white ink. $15, all sizes available.       
Black and white, green donor ribbon on the back.
     

Thank you so much for caring for Harley, we all appreciate your prayers.

Thank you,
Aunt Sarah White

Update 10/15:  
Little Harley got a new liver in a procedure that went even better than expected!  This is good news, but keep on helping and praying he comes through with flying colors…

Update 10/21 (From Harley's Dad): 
Little Harley is doing well. We are still in the PICU here at Texas children's hospital in Houston, with several months left on their projected discharge time frame. He has been progressively getting better and his labs show his progress. His liver functions are slowly getting better, but he is still on a ventilator and constant dialysis. We will be in the PICU for approximately 2 months and then on to a "lesser care" floor, one where we see the nurses just for meds and labs. Right now we have one nurse and sometimes two nurses in the room at all times due to his need of constant care. We have a plethora of doctor teams that come and check up on Harley like clockwork.  Thank you to everyone that has donated to the Harley cause. It has helped a lot because I have run out of PTO and now I am taking absent by permission. So bills are being paid thanks to all of my brothers in Amarillo!

Update 11/22 (From Harley's Dad):
I wanted to let you and all of the guys know that Harley is doing great, his Drs are all impressed with his progress. His kidneys have not come back yet but the Drs and nurses are very confident that they will soon. Within the next few days we will be moved from the PICU to the PCU (progressive care unit). The PCU is a step down from PICU and a step up from the regular hospital rooms. The Drs have taken him off of 99% of his meds and have gone from constant dialysis to intermittent hemo dialysis. The HD  is every day for four hours, but soon that will look at doing it every other day to "challenge his kidneys". Still a long way from home but I think we are out of the worst. He had caught a virus about 2 weeks ago and it had the Drs very scared. In fact one of the doctors told us that it wasn't good and we had better start praying. Harley made it through the virus with no problem. He actually got his breathing tube out and was on room air during this virus. It seems as if nothing will slow this little trooper down! I want to thank all of you for the prayers and donations since we have been here.